The Breast Cancer Collaborative Registry (BCCR) is a web-based system developed by the Fred & Pamela Buffett Cancer Center at the University of Nebraska Medical Center. The BCCR is designed to unite centers with expertise in breast cancer epidemiology, genetics, biology, early detection and patient care to facilitate rapid and uniform collection of critical information and biological samples to be used in developing prevention and treatment strategies against breast cancer.

This resource is available to all participating institutions that desire the appropriate computing support. Institutional IRB approval and patient informed consent must be obtained.

The purpose of the project is to develop a national breast cancer resource, which will include personal background information, medical, and family details, as well as dietary and environmental exposure history as well as a biospecimen repository from breast cancer patients, women at increased risk for breast cancer, and their family members. One of the major goals of the BCCR is to help researchers identify factors that influence the risk of developing breast cancer, factors that influence survival, and how the disease and different treatments affect the quality of life of breast cancer survivors.

The BCCR is committed to protecting each individual’s confidentiality/privacy online. Security issues are addressed using recommendations of the Healthcare Information and Management Systems Society (HIMSS) Privacy & Security Toolkit and the electronic information security standards regarding the collection, use, and retention of data mandated by the Federal Health Insurance Portability and Accountability Act (HIPAA).
Developed by and hosted at the University of Nebraska Medical Center, Fred & Pamela Buffett Cancer Center


 
 
If you are interested in becoming a participating center or you are an individual/family interested in participating in this study and/or want more information regarding the BCCR please contact us.
     
  Publication to cite: Simon Sherman, Oleg Shats, Elizabeth Fleissner, George Bascom, Kevin Yiee, Mehmet Copur, Kate Crow, James Rooney, Zubeena Mateen, Marsha A. Ketcham, Jianmin Feng, Alexander Sherman, Michael Gleason, Leo Kinarsky, Edibaldo Silva-Lopez, James Edney, Elizabeth Reed, Ann Berger and Kenneth Cowan. Multicenter Breast Cancer Collaborative Registry. Cancer Informatics 2011:10 217-226
(c) 2007-2013.
 Fred & Pamela Buffett Cancer Center