The Breast Cancer Collaborative Registry
is a web-based system developed by the Fred & Pamela Buffett Cancer Center at
the University of Nebraska Medical Center. The BCCR is designed
to unite centers with expertise in breast cancer epidemiology,
genetics, biology, early detection and patient care to facilitate
rapid and uniform collection of critical information and biological
samples to be used in developing prevention and treatment strategies
against breast cancer.
This resource is available to all participating institutions that desire
the appropriate computing support. Institutional IRB approval and patient informed
consent must be obtained.
purpose of the project is to develop a national breast cancer
will include personal background information, medical, and family
details, as well as dietary and environmental exposure history
as well as a biospecimen repository from breast cancer patients,
women at increased risk for breast cancer, and their family members.
One of the major goals of the BCCR is to help researchers identify
factors that influence the risk of developing breast cancer, factors
that influence survival, and how the disease and different treatments
affect the quality of life of breast cancer survivors.
The BCCR is committed to protecting each individual’s confidentiality/privacy
online. Security issues are addressed using recommendations of
the Healthcare Information and Management Systems Society (HIMSS)
Privacy & Security Toolkit and the electronic information
security standards regarding the collection, use, and retention
of data mandated by the Federal Health Insurance Portability and
Accountability Act (HIPAA).