An Individual interested in participating in the BCCR:
Participation in this registry is entirely voluntary. There is no charge to the subject and no compensation for participation in this study.
Individuals must be registered with a clinician at a participating center and sign an Institutional IRB approved subject informed consent form to participate in the study. To find a participating center near you, please view the list of participating centers with IRB approval or feel free to contact us (the BCCR system coordinator) for more information.
To be eligible for this study, individuals must meet the following criteria:
- Adult individuals (male and female) who:
- have a personal diagnosis or history of breast cancer - have characteristics of hereditary breast cancer or have an increased risk of breast cancer.
- Age 19 or greater.
- Able to provide informed consent.
To become a participating investigator/center in the BCCR
or to obtain more information about becoming a participating investigator,
contact the BCCR system coordinator. The BCCR system coordinator
is available to answer your questions and will help define your
center and identify users for your center and their level of access
to the registry.
The BCCR operates under an IRB-approved protocol for data collection,
storage, and sharing at the BCCR Web-site. Investigators will need
to have all of the research activities and consent forms approved
by their Institutional Review Board in order to participate in the
BCCR. You will receive an Investigator Packet that contains materials
to assist you with your IRB submission. |